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Protecting Genetic Data—Understanding and Managing Privacy, Policy, and Ethical Concerns in the Digital Age
FREE and OPEN to ALL. Junior Academy members, middle and high school students welcome and encouraged to attend. Registration not required.
Are there privacy risks inherent in sharing your genetic data? In our fast-paced, digital and technological era how do we manage the data-driven wealth of healthcare-related human information without compromising privacy? Tap the experts in this informative and fascinating panel discussion on genetic data privacy to learn more about the issues that surround the sharing of our genetic information in a digital age.
A Panel Discussion with Featured Panelists:
Jonathan Heusel, M.D., Ph.D., Professor of Pathology and of Genetics; Director, Clinical and Translational Genomics, Department of Pathology & Immunology, Washington University School of Medicine; Co-Director, The Cordell Institute for Policy in Medicine and Law, Washington University in St. Louis
Suzanne Mahon, DNSc, RN, AOCN, AGN-BC, Professor, Department of Internal Medicine, Division of Hematology, Oncology & Cellular Therapy, Saint Louis University and SLUCare Cancer Center, SSM Health Saint Louis University Hospital
Elizabeth Pendo, JD, Joseph J. Simeone Professor of Law, Center for Health Law Studies and the William C. Wefel Center for Employment Law, Saint Louis University School of Law
Neil Richards, JD, Thomas and Karole Green Professor of Law; Director, The Cordell Institute for Policy in Medicine and Law, Washington University in St. Louis
Protecting Genetic Data is an Ethics in Science Series partnership presentation of The Ethical Society of St. Louis and The Academy of Science St. Louis.
presented in collaboration with
Evenings on Genetics and Genomics Series of The Academy of Science – St. Louis, Washington University in St. Louis Institute of Clinical and Translational Sciences, the Intellectual and Developmental Disabilities Research Center, Siteman Cancer Center, and the Children’s Discovery Institute of St. Louis Children’s Hospital and Washington University School of Medicine.