Moving Mountains: Parents and Families Driving Research in Rare Disease
T-Rex Room 5050 Oakland Avenue, Lower Level, St. Louis, MOFREE and OPEN to ALL. Junior Academy members, middle and high school students welcome and encouraged to attend.
Featured Speaker: Stephanie Snow Gebel, founder, Snow Foundation
Stephanie Snow Gebel is the founder of the Snow Foundation, a voice for rare disease that is working towards a cure for Wolfram Syndrome and developing novel therapies for diabetes, vision loss, hearing loss, and neurodegeneration. Hear one family’s story and join a discussion about how you can motivate and engage the research enterprise. Washington University researchers, Fumi Urano, M.D., Ph.D., and Tamara Hershey, Ph.D., who have collaborated closely with the Snow Foundation, will also be present for the discussion.
Moving Mountains is an Evenings on Genetics and Genomics Series Community Event of The Academy of Science - St. Louis, Washington University in St. Louis Institute of Clinical and Translational Sciences, the Intellectual and Developmental Disabilities Research Center, Siteman Cancer Center, and the Children's Discovery Institute of St. Louis Children's Hospital and Washington University School of Medicine.
